Program


 

"Together for Better Care"

 
 

Saturday, March 18th                                    
Location: Gran Hotel. Fundación CaixaForum Palma (Pl. de Weyler, 3)

08:00 - 09:00
Registration

09:00 - 09:10      
Welcome: Francesca Cañellas (Spain) and Geert Mayer (Germany)

09:10 - 09:30      
Prospective European Narcolepsy Data Base. Results: Ramin Khatami (Switzerland)

09:30 - 11:15
Symposium 1: Genetics and immune function in narcolepsy: News and controversies. 
Chair: Birgitte Kornum (Denmark) and Mehdi Tafti (Switzerland)

09:30 - 09:50     
Learning from H1N1-related narcolepsy and news in genetics: Hanna Ollila (USA)

09:50 - 10:10     
Autoimmune dysfunction in narcolepsy theoretical update: 
Birgitte Kornum (Denmark) and Mehdi Tafti (Switzerland)

10:10 - 10:50     
Controversy debate: Is narcolepsy associated with increased risk of comorbid autoimmune diseases?
- Pro: Francisco Javier Martínez-Orozco (Spain)
- Con: 
Yves Dauvilliers (France)

10:50 - 11:15     
Open discussion: Genetics and immune function in narcolepsy

11:15 - 11:45 
Coffee Break

11:45 - 13:30
Symposium 2: Diagnosis of narcolepsy
Chair: Rosa Peraita-Adrados (Spain) and Karel Sonka (Czech Republic)

11:45 - 12:05
Difficulties in diagnosing narcolepsy: Prevalence of narcolepsy in Catalonia (Spain)Carles Gaig (Spain)

12:05 - 12:25
Role of PSG/MSLT in the diagnosis of narcolepsy including sleep microstructure: Fabio Pizza (Italy)

12:25 - 12:45
Diagnosis of narcolepsy and its borderland: Pitfalls and limitationsClaudio Bassetti (Switzerland)

12:45 - 13:10
Creation of an EU-NN brain bank. Dutch experience and patient opinions: Rolf Fronzeck and Leontien Sickenga (Netherlands)

13:10 - 13:30
Open discussion: Diagnosis of narcolepsy

13:30 - 15:30
Lunch and Business Meeting EU-NN (Only EU-NN members)

13:30 - 16:00
Free time lunch/poster viewing/networking for participants

16:00 - 17:30
Symposium 3: Pharmacological treatment in narcolepsy: News and controversies
Chair: Aleksandra Wierzbicka (Poland) and Rafael del Río (Spain)

16:00 - 16:20
Review of neuronal pathways implicated in narcolepsyMiguel Garzón (Spain)

16:20 - 16:40
Results from the postmarketing surveillances study on sodium oxybate in adults: 
Geert Mayer (Germany)

16:40 - 17:00
Available treatments of narcolepsy and future perspectives: Physicians' perspectives: Gert Jan Lammers (Netherlands)

17:00 - 17:20
Patients' perspective of pharmacological treatment of narcolepsy: Carmen Domínguez (Spain)

17:20 - 17:30
Open discussion: Treatment of narcolepsy and related hypersomnolences

17:30 - 18:00
Break

18:00 - 19:30
S
ymposium 4: Cognitive and psychiatric comorbidity of narcolepsy
Chair: Claire Donjacour (Netherlands) and Giuseppe Plazzi (Italy)

18:00 - 18:20
Neuropsychological disturbances in narcolepsy with cataplexy: A case-control study: Pablo Medrano (Spain)

18:20 - 18:40
Narcolepsy in children: association with H1N1 flu, psychiatric, cognitive comorbidities and impact on daily life: Attila Szakacs (Sweden)

18:40 - 19:00
Delusional confusion of dreaming and reality in narcolepsy: 
Claire Donjacour (Netherlands)

19:00 - 19:20
Psychiatric comorbidity. Narcolepsy and psychosis: Francesca Cañellas (Spain)

19:20 - 19:30
Open discussion: Psychiatric disorders and narcolepsy

19:30 - 20:45
Optional guided visit to the Majorca Cathedral

21:00 
Dinner Restaurant: El Náutico, Muelle de San Pedro, s/n

Sunday, March 19th                                      

09:00 - 10:15
Symposium 5: Psychosocial aspects of narcolepsy
Chair: Laura Lillo Triguero (Spain) and Michel Lecendreux (France)

09:00 - 09:20
Narcolepsy with cataplexy and pregnancy: Elena Calvo (Spain)

09:20 - 09:40
Narcolepsy and school counseling: The experience in the Netherlands: 
P. Buijserd-Amesz and Y. Nuvelstijn-Veltkamp (Netherlands)

09:40 - 10:00
Patient-related outcome parameters of functioning. Results of the 7th Helsinki narcolepsy day survey: Markku Partinen (Finland)

10:00 - 10:10 
Open discussion: Psychosocial aspects of narcolepsy

10:10 - 10:45
Invited conference: "Ups and downs of the continuous effort towards an accurate diagnosis of narcolepsy: An historical perspective" Professor Michel Billiard (France)

10:45 - 11:15
Coffee Break

11:15 - 13:00
Symposium 6: Closing Symposia
Chair: Geert Mayer (Germany) and Enrique López García (Spain)

11:15 - 11:35
Young Scientist Award

11:35 - 11:45
Best Poster Award

11:45 - 12:30
Presentations by Europeans patients associations

12:30 - 13:00 
Summary of the meeting and future European Narcolepsy Days

13:00 - 14:00
Lunch, Farewell

 


Organisers:

 


Sponsors:

        

 


Collaborators: